Note: By clicking on these links you will be leaving the
RSDSA website. These links are provided as a service to our
readers and are neither a guarantee nor an endorsement of
the products or services offered. RSDSA is not responsible
for the content on other websites. Read more about RSDSA's Privacy Policy.
CRPS-related Websites
General Information and Raising Awareness
Youth with CRPS
Research
Support and Chat Groups
How To Cope With Pain
Website and Blog for People in Chronic Pain
In Sickness and In Health: A Place for Couples Dealing with Illness
The Definitive Link List for Reflex Sympathetic Dystrophy (CRPS), Chronic Pain, and Related Topics
Dr. Howard T. Black, Professor (Emeritus) of Medicinal/Organic Chemistry, Eastern Illinois University
Non-CRPS-related Websites
Healthcare
- Searching for a pain specialist or pain clinic in your area? The Dannemiller Foundation has compiled for your use a list of hundreds of pain specialists and pain clinics from all over the globe.
- Foundation
for Health Coverage Education: Coverage for all through
education
- Health
Assistance Partnership provides help an resources in
the areas of Medicaid, Medicare, private insurance, and
for those who are unisured.
- The
Health Care Problems Archive gathers accounts of problems
with the US health care system from people involved in all
facets of the system. The accounts are made available to
all who are developing solutions to health care system problems.
- Health
Insurance Portability and Accountaility Act (HIPAA)
This interactive tool, provided by the Federal Government,
helps answer your questions about health coverage and your
rights and protections under the HIPAA.
If you have questions on getting and continuing health coverage
during events such as losing or changing jobs, pregnancy,
moving, or divorce, you can get answers here. If you are
an employer, you can get answers to common questions about
getting and renewing group health coverage for your employees.
- The
Patient Advocate Foundation is a national not-for-profit
organization that seeks to safeguard patients through effective
mediation assuring access to care, maintenance of employment
and preservation of their financial stability.
- PrivateHealthAdvice was formed to offer a unique reference point on how private healthcare works in the uk. A resource for learning how private healthcare works: treatments, waiting time, costs, exclusions, aftercare and association with the NHS.
Legal
Pain Education
- Central
Pain Syndrome Alliance (CPSA)
- Commission on Accreditation
of Rehabilitation Facilities is an independent, not-for-profit organization that reviews and grants accreditation
services as requested by a facility.
- Diabetic
Neuropathy Information
- International Association for Cannabis as Medicine (IACM) is a scientific society that advocates the improvement of the legal situation for the use of the hemp plant (Cannabis sativa L.) and its pharmacologically most important compounds, the cannabinoids, for therapeutic applications through promotion of research and dissemination of information. Pain-related cannabis-related research is also available here.
- The
Mayday Pain Project goal is to increase awareness and
provide objective information concerning the treatment of
pain.
- National Center for Complimentary
and Alterative Medicine (NCCAM) is the Federal Government's lead agency for scientific research on complementary and alternative medicine (CAM).
- The National Fibromyalgia
Association develops and executes programs dedicated
to improving the quality of life for people with fibromyalgia.
- The
National Foundation for the Treatment of Pain provides
support for people suffering from intractable pain, their
families, friends, and the physicians who treat them. It
is also a resource for medical professionals and attorneys
concerned with legal issues regarding the legitimate treatment
of pain.
- National
Institute of Neurological Disorders and Stroke (NINDS) has a listing of clinical trials for neuropathic
pain and good information about CRPS.
- National
Institutes of Health (NIH) Pain Consortium coordinates
activities and programs related to pain research.
- National
Multiple Sclerosis Society
- National
Organization for Rare Disorders (NORD) is a clearinghouse
for information concerning disorders affecting fewer than
200,000 individuals worldwide. NORD also sponsors an on-line
used medical equipment exchange and publishes two newsletters:
Orphan Disease Update and NORD Online.
- NIH Office
of Rare Diseases has information on more than 6,000
rare diseases.
- Pain.Com is an excellent resource for both professionals and consumers.
It has a special "Ask the Doctor" section that contains
frequently asked questions and answers about RSD's diagnosis,
treatment, and management.
- Pain in infants, children, and adolescents: Resources for parents and professionals
- Pain
and Sleep Apnea (from the American Sleep Apnea Association). Most patients with sleep apnea do not
know they have the disorder, but it should be ruled out
before patients are given paid medications that can affect
their respiratory drive or relax their muscles.
- Thermology:
the study of heat using infrared thermal imaging is a comprehensive commercial site, maintained by Ashwin
Systems International, Inc., a manufacturer of infrared
thermal imaging machines.
Pain-related Academies, Associations, and Societies
Prescription Medication and Other Patient Assistance Programs
- Directory
of Prescription Drug Patient Assistance Programs provides
the contact information on pharmaceutical companies that
provide prescription medicines free of charge to physicians
(also available in PDF format).
- Disabled Dealer Magazine specializes in bringing products and services to the elderly and disabled community in one simple and informative publication. Each issue of Disabled Dealer Magazine also features several articles and stories on mobility assistance equipment and home medical supplies and services, the latest medical reports, new government programs and federal benefits for the disabled, and listings for events.
- RXList: The
Internet Drug Index provides information on
medications and other helpful sites.
- The Wheelchair
Foundation is a not-for-profit organization leading an international
effort to create awareness of the needs and abilities of
people with physical disabilities, to promote the joy of
giving, create global friendship, and to deliver a wheelchair
to every child, teen and adult in the world who needs one,
but cannot afford one.
- Zero Unintentional
Deaths is a campaign developed to educate physicians,
people who suffer chronic pain, and the community in general
about the serious issue of unintentional overdose deaths
relating to methadone and other prescription medications.
Research
- The
Computer Retrieval of Information on Scientific Projects (CRISP) is a searchable database that contains information
regarding federally-funded biomedical research projects
conducted at universities, hospitals, and other research
institutions. This site allows users to research scientific
concepts, emerging trends and techniques, or identify specific
projects and/or investigators.
- PubMed is a service of the U.S. National Library of Medicine that includes over 18 million citations from MEDLINE and other life science journals for biomedical articles back to the 1950s. PubMed includes links to full text articles and other related resources.
Social Security and Workers Compensation
Travel
- Air Charity Network provides access for people in need seeking free air transportation to specialized health care facilities or distant destinations due to family, community or national crisis.
- Mercy
Medical Airlift Charitable Air Transportation is a not-for-profit
organization dedicated to providing charitable air transportation
for patients in need.
- MedicAlert provides identification and information for emergencies.
Updated
January 5, 2009
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