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Youth
Elise was a gymnast, dancer, and sports aerobics competitor when she was diagnosed with CRPS in November 2005, following ankle surgery. She had a goal and was determined to reach it. She has currently reached the Australian Finals. Jessika lives in Trinidad & Tobago, West Indies. This photo shows her kneeboarding for the first time after treatment for CRPS. Jessika believes in herself and her motto is
"Live life… uninterrupted!"
Yvonne Larity's goal was to be on the Olympic track team. She was diagnosed with CRPS in October 2005 and has had to alter her goals. She now rides competitively. University of Illinois' Kayani Turner (11) played volleyball through the pain of her CRPS.
Credit: Adam Babcock

News

One final shot for Illini's Turner

In Constant Pain, but in the Game
River Hill Senior Endures Rare Disorder to Stay on Court

A painful mystery, 'miracle' recovery

Milford's 'mayor for the day' has what it takes to overcome adversity

Imaging Study Of Pain Sheds Light On Mystery Condition

Eastfield student overcomes adversity with academics

RSD in Motion's 'Walk-n-Roll for RSD'

Stories

Elise's Story
By Christine Robinson

Alissa's Story (Video)

Anna Brilliant's Story
Testimony from the NJ CRPS Awareness/Education Bill Hearing

Changing the Course of My Dreams
By Yvonne Larity

Finding Other Ways to Give: Nicole Biller's Awareness Story

Orange Ribbons Pinned in Our Dreams
By Ashley Mahoney

Jessika's story: "Live life …uninterrupted!"
By Laura Bortolusso-Welch, Trinidad & Tobago. W.I.

Melanie's Story

Kim Bosse's Essay from McGee March Madness 2008

Stephanie Lewis's Essay from McGee March Madness 2008

Surviving College with CRPS
By Ashley Mahoney

Parents

Does Your Child’s School Have a "Faker’s Club"?
By Dorthy Switalski

RSDParents Yahoo! Online Support Group

Random Eruptions
By Randy Erickson
A father's thoughts on his daughter's CRPS

CRPS—A Parent's Perspective

What We Can Learn From Aya Ravek

Your Child Is Diagnosed With CRPS

Publications and Resources

Management of Pediatric Patients with Complex Regional Pain Syndrome
By Robert T. Wilder, MD, PhD
(More Medical Articles)

Pediatric CRPS Tri-Fold Brochure
This brochure offers information and resources for the family and friends of youth with CRPS and those who want to help.

Pediatric CRPS Slide Kit (PDF)

CRPS and Sport Injuries: Prevention is the Name of the Game

Helping Children/Youth With CRPS Succeed in School
This brochure is designed to help schools accommodate the special needs of children with CRPS.

Take Flight With Hope: Stories of Hope and Transformation
This brochure offers an array of patient stories, and as Executive Director Jim Broatch, MSW, writes "People make changes, they move forward, they live lives they never imagined they could or would. CRPS brings huge losses, but, as you will read, there are significant gains as well."
Single copies are available free for our members. Additional copies are available for $2 (members) and $3 (non-members).

Websites (More Related Sites)

fightingagainstrsd is a website by teenagers who have CRPS.

Pain in infants, children, and adolescents: Resources for parents and professionals

RSD in Motion

RSD Hope Teens
An online support group for kids and teenagers suffering from CRPS.

 

Updated November 21, 2008

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